When we began the GAPS intro on June 25th, 2009, my daughter was 3 1/2 years old and diagnosed with severe food allergies and managed eczema.
Back Story: As I've written, we began the GAPS protocol in an attempt to treat/cure/decrease/help in any way possible my oldest daughter's food allergies. She had had eczema since she was 2 months old and had a clinical reaction to sesame at 13 months (face swelled, full body rash, red/white streaks around her mouth). A RAST test confirmed multiple food allergies--most tree nuts (cashew and pistachio being the highest), peanuts and sesame, and minimal allergies to other legumes and to wheat. We had a RAST test done yearly in order to watch for shifts and changes. Despite strict avoidance of the offending foods and eating a diet of no refined sugar or processed foods, her IgE levels increased each year (with the exception of wheat which is the only allergy that she 'outgrew'). Our cleaning products, hand soaps, laundry soaps, and bath products were (and still are) all natural. The only compromise I made was with Eucerin and Aquaphor--both of which were the only creams that worked to subdue her eczema. Olive oil, coconut oil, special lotions made to coat eczematic skin--none worked. My successful eczema symptom reducer was this: AM-plantain ointment on her 'spots,' Afternoon--plaintain ointment, PM-plaintain ointment and thick coat of Eucerin. I used Aquaphor during the day if she needed a barrier (like at a restaurant with detergent-washed table cloths). At some point I finally figured out that certain foods, regardless of if they showed on a RAST test as being an allergy, directly caused her eczema. We cut out wheat and all members of the cabbage family (broccoli, cauliflower, kale, brussel sprouts, mustard, etc.) and her eczema went away--until, of course, she happened to eat one of the above foods in any quantity.
As most of you reading know, a physician who is willing to even consider a treatment for 'curing the incurable' is few and far between. After every appointment I first felt defeated, then ripped-off, then convinced of my need to go to medical school and set the Allergy and Immunology field straight, then would channel my energy into a marathon researching frenzy. I needed options. I always need options. It was during the wee hours of the morning that I came across GAPS. After a few weeks of debating, considering and devils advocating, we began the intro.
On GAPS: Within 3 months, GAPS cleared up my daughter's persistent eczema. After 6 months, the food intolerances (which did not show up as TRUE allergies on her RAST blood test but would cause her eczema to flare up within minutes) to wheat and the cabbage family vegetables disappeared. To this day (she's 6 years old) she can freely eat the foods that would cause her itching, discomfort and eczema. For any parent of a child with eczema--it's a gift to see clear skin where oozing, inflammed scales used to be.
Being on the GAPS protocol* also helped both my daughters to overcome colds and viruses much more quickly. It seemed to help decrease seasonal allergies. Our (conventional) pediatrician would state how she couldn't believe--with all the allergies--that my oldest wasn't in her office more often.
Unfortunately, GAPS has done nothing for my daughter's true food allergies. In fact, my daughter's sensitivity to peanuts has skyrocketed. It was after her annual RAST test, after being on GAPS for 15 months, that her peanut IgE results were 100+ on a scale of 1 - 100. Needless to say--I grieved. I grieved for her, for the burden she has to carry. I grieved for the countless hours I labored over meals, over debating with family members, over the now futile hope I had in helping my child. I gave myself some time to grieve and then the realizations set in . . . my job as a parent is to guide. This IS her burden to bear and my role is to help her do just that. My mama-bear instincts needed to be redirected from protection/cure to education/management. I also realized that I need to get loud. I mean LOUD and stand up as--what I like to call--an 'involuntary advocate' for food allergies. People are unaware and misinformed until someone speaks up. And what better motivation than for your child? Lastly, I became extremely thankful--that, yes, GAPS worked and my daughter is eczema free.
I've realized that GAPS is an optimal diet for digestive disorders (and the many, many symptoms associated) which is why it so quickly healed food intolerances. However, true allergies occur from an immune response which is a completely different function. It dawned on me when thinking about how a food allergic person can have an allergic reaction from the food just touching their skin--it's not in their stomach and no where near their intestines [you can say, 'DUH!' It's okay. . . :) ].
. . .And so we are exploring options to address the food allergy immune response specifically (I'm thinking about starting a new blog about it! Anyone interested in reading it??).
*To be perfectly honest--our GAPS protocol turned into a modified one. We did no enemas, probably ate too much winter squash and fruit, and I'm sure a host of other things. I do love it for it's back-to-basics-eat-what-your-great-grandparents-did nature and will most likely base our eating patterns off of it for the long term. The benefits of eating a GAPS diet definitely outweigh the effort/inconvenience--even if you think there's an inkling of a chance it can help--DO IT. You won't regret it--it makes life easier in the long run.
Sunday, October 16, 2011
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I read your post with a lot of interest. You have been through so much and things continue to be a huge challenge with the food allergies. I would have written you a private email, but I could not figure out how to contact you except through posting a comment. I am a holistic adult and child psychiatrist. I just completed the GAPS practitioner training in New York at the end of September. I have a blog that has a GAPS focus that may be of interest to you and your readers. I will include a link to it.
ReplyDeletehttp://judytsafrirmd.com/dr-natashas-army/
I have an egg allergy that results in anxiety and insomnia . I asked Dr Natasha at the training if one healed and sealed the gut and was on GAPS for several years, could one still have an allergy that would not resolve. She said "Absolutely". What I found so interesting was that she said that it could be due to a parasite or a fluke. I never thought of allergies as being due to parasites. Anyhow, there is so much that we do not know or understand. Your site looks totally interesting and I look forward to exploring it further. Best, Judy
Hi Judy--
ReplyDeleteYes, I remember reading a sentence or two in Dr. Campbell-McBride's book that stated true allergies will probably not be resolved. A little disheartening considering GAPS is so wonderfully healing . . . it's not a cure-all though. Interestingly enough, my daughter's new allergist made a comment to me about how peanut protein is similar in structure to parasitic worms. What does this mean?? Only time will tell as more and more research is done. It's amazing how little is known regarding the 'WHY?' of allergies. Thanks for posting your link (love the name by the way!) and for the positive words about my blog. I'm always available for comments/replies. :)
You might want to take a look at the book, "The Cure for All Disease" by Hulda Clark. It makes a lot of sense. I wish you luck in your quest for health for your family. Cross your fingers for my family as well.
ReplyDeleteThanks for posting an update. I followed your blog through 2009 and would be really interested to continue to follow your journey if you do decide to create a new blog addressing the allergy issue.... please post a link here and keep striving :)
ReplyDeleteKC--I'd be interested on your experience with the Hulda Clark protocol.
ReplyDeleteDWD--Love you! Thanks for the support!!
Hi, I just stumbled on your blog. I am trying to prepare to put our family on the Gaps diet. I am trying to research but have 3 little ones 5,3, and 1. Any tips for me that you have learned? What site is most helpful to read? Did you go anywhere when you were on the intro diet? I home school but we do go to church activities etc. What do I do about snacks in their classes at church on the intro diet. Right now I send a snack but it is not Gaps intro friendly, raisins or fruit leather etc. Is there anything easy I can send with them or will we need to just stay home. I am just not picturing how we can go anywhere. I will try to read more of your blog posts. I wish I could sit down and talk with you in person! Thank you, Mary
ReplyDeleteHi Mary--
ReplyDeleteGood for you making strides to better your family's health! I found the GAPS intro not as difficult as I expected regarding how the kids would take it. They do what you do (and feel how you feel when you're on it). A day or so of just soup/broth is not difficult as long as you're all doing it together and eating often. I bought sippy cups for my kids and kept them filled with broth. Plan fun activities for broth days--rent a few new movies, play some games, sip soup in a new spot (instead of the kitchen table). We did go places on the intro (though not too much on broth days)--you just have to be prepared. I would pack a ton of snacks and--believe it or not--we would supplement at restaurants. I remember eating 'steamers' quite a bit! Steamed clams or shrimp with just butter. It was nice, since my husband was not doing GAPS, to have a change of scenery and hang out at a restaurant. I'd have hot tea (I kept mint tea with me in case it wasn't offered). He'd be pretty considerate of the kids in ordering too--perhaps a hamburger/steak with no seasonings and the kids could share the meat. Snacks included cooked carrots/other vegetables, sausage bites, etc. A friend of mine (who also did GAPS) laughs remembering the time they went to the movies with little baggies full of sausage! Her kids were happy--that's what matters. :) It's good that you already send in a snack--the kids are already used to eating something different (the hardest transition in my opinion)--all you have to do is make it GAPS (intro) friendly. I'm thinking about 'easy' church snacks. First, feed them well before leaving and be ready for a meal when coming home. During church activities, you need something to fill the snack time (instead of hungry bellies)--something easy. Carrot sticks, or shredded carrot, or raw carrot 'chips' (the same old thing in a different form adds renewed interest) or any raw vegetable in little bite sized pieces--sprinkle with sea/celtic salt. It was interesting to see the change in food preferences happen while on the intro--eggs tasted amazing to all of us! Bits of scrambled egg can be a snack, too. If you haven't done so already--join the GAPS help group on Yahoo and check out gapsguide.com. Keep the questions coming!
Thank you SO much for the reply!! It was helpful. I have so many questions going through my brain these days as I try to think about trying to do this. I may take you up on asking some more!!
ReplyDeleteHi! I came across your blog while looking for a more affordable way to purchase Aalgo Seaweed Powder as I am in Singapore!
ReplyDeleteWe are doing GAPS and feeing very discouraged. Dd (11) broke out majorly after stuffing her face with rock melons and grapes last SUnday. I am presuming that she is now experienceing a die off from starving the yeastie beasties since I have stopped all fruit even squash and carrots. I have had to give her antihistamines to provide relief as the detox baths are not working fast enough.
ANyway, it is good to know that your dd's eczema has resolved itself after 6 mths of GAPS.
I am presuming that youy pressed on even tho the symptoms worsened till the breakthrough came? I am rather confused whether to proceed to the next stage or not since we do not have any digestive issues. But the rashes and itching have most certainly not lessened :(
ANy ideas? Thanks!
On the true allergies issue, I would just like to say that while it's true that allergies can start even on the skin, which is really far from the gut, it is also true that any malfunctions in the immune system probably ORIGINATE in the gut, so even if they never resolve, there is still some hope that she may eventually improve. That's what I've come to understand, anyway. True allergies tend to follow some kind of 7 year cycle, if I'm not mistaken, so with prolonged application of GAPS and periodic run-throughs of the intro protocol, she may still lose some allergies along the way, or at least have a less violent response (which isn't good news as far as expanding her diet, but at least she won't go into shock if someone accidentally sneezes peanuts on her.) There is one other possible cure-- A very promising study was done with camel milk, where children with various allergies, (all were allergic to cow/goat/sheep milk, but also there were nut allergies, etc) were given nothing but unpasteurized camel milk (very nutritionally complete anyway) for two weeks, then introduced real food back in over a period of two weeks, the allergies reducing after 4 days and disappearing after a week. No recurrences were reported among the 8 children. It has also been shown to reduce autistic symptoms and Crohn's symptoms, suggesting that it does something pretty amazing in the gut. Camel milk is illegal in the US, even in pasteurized form, but if you own a camel, participate in a co-op that owns a camel, or know someone that owns a camel, you can get it legally. The only known camel dairy in the US is in California, and I think under some circumstances they may give away or assist in securing camel milk for people who need it for medical purposes. I know it sounds too good to be true, obscure, and difficult, but I think you could have said the same about GAPS at one point. I just thought I'd bring it up. If you google camel milk allergy, you can find the study fairly easily. It's a published, legit pubmed case study. Another option is to spend a month overseas, if you happen to have the funds and contacts to do it. Even in arab countries where you don't normally see camels, a camel can generally be found.
ReplyDeleteHey Summer--
ReplyDeleteI am FASCINATED with the camel-milk study and will definitely google it. I delve into any new research on food allergy treatment--so thanks for that. As my daughter's new allergist says--knowledge regarding food allergies is in its infancy. So, though I do not believe GAPS to be an end-all/be-all for food allergies (especially since Dr. Campbell McBride states that the GAPS diet won't cure true food allergies), it would not surprise me to find that it lessens them in the long term. The allergist we work with now is focused on lowering my daughter's overall IgE instead of focusing specifically on one or two foods. Very similar to what GAPS can do (anti-inflammatory). Thanks for your comment!
I am glad to finally stumble across someone who also believes that GAPS will NOT fix a TRUE IgE mediated allergy. I keep reading over and over how GAPS fixes everything, and honestly, your exact story is why I have not done GAPS. I've integrated a lot of its ideas (broth, natural foods, good healing veggies, etc), but just find GAPS to be too restrictive to even try.
ReplyDelete